Although I was treated with IV Steroids last year, the whole experience is a bit of a blur as I was in the midst of being diagnosed two new chronic conditions. I remember being overly emotional and having trouble sleeping, but that’s about it.
This is the first time I’ve been on high dose oral steroids (200mg tapered over 15 days). I feel like my insides are buzzing. I’m having trouble sitting still in spite of my seizing muscles. And I’m eating. Like everything. All the time. It goes without saying that sleeping has become a bit of a challenge.
Related note: my husband loves it! The laundry is done, the house has been tidied, blog posts have been written, I reorganized my health binder, and am planning to sort through two boxes of stuff that I have been meaning to get to for about six months.
So apparently my relapse has an upside? 🙂
Julia Will Be Fine 
I had 5 days of infusions 3 weeks ago and I’m still not sleeping well. 😦 I didn’t feel more hungry than usual, I’ve actually been losing weight. 😦
I remember the bad taste from the IVSM that turned me off food for a bit, but I think it was just a few days. Prednisone makes me ravenous….I wish it were the other way! I hate that you’re still not sleeping. Maybe ask for a sleep aid temporarily until you adjust back? Five days of IV steroids are rough on the body.
I hope overall it has worked to calm your relapse.
Prednisone , my love-hate relationship. Really like your blog. Thanks for stopping by mine.
Jill
I’m with you re: prednisone. After a week of not sleeping more than four hours a night, any fun is officially over and I’m ready to return to normalcy. Any day now I hope…
My steroid experiences are so opposite (most like everything else too though) they totally knock me out, I lose my appetite and my sense of taste is usually totally gone too. Anyone else ever get that? My doc and the nurses never heard of that. There’s that terrible taste, but having it totally disappear was a new one for them.
Ahhh prednisdone….I had a 2 week infusion and had the midnight munchies for months after. Now I’m slowly getting weaned off them and am finally getting a goodnight sleep!